Today is Global MND Awareness Day

Today, Sunday 21 June, is Global MND Awareness Day and Leeds Rhinos will be marking the day by celebrating the career of our own Rob Burrow, the legendary half back who was diagnosed with MND in December 2019.

We should have been helping to support the work of the MND Association with a special matchday dedicated to raising funds and awareness with a local derby clash with Wakefield Trinity at Emerald Headingley. However, the coronavirus lockdown has meant that game has been postponed but we still want to make you aware of the work that the MNDA do, both nationally and in our local communities.

Now more than ever, with the world in the grip of a global pandemic, we want to reach out to the thousands of people across the world who are living with motor neurone disease.

In these difficult times, we can’t hold each other’s hands. But we can be there for each other, offering a hand of friendship, kindness, support, knowledge, love, and hope.

We will be offering the hand of thanks tonight from 7.30pm with the 2011 Grand Final against St Helens, Rob’s finest hour, for you to enjoy again.

For more than 40 years, the MND Association has been doing just that. Yet it’s more important now than ever.

In the three months since the start of the pandemic the MND Association has:

  • Spoken to 3,378 people with MND. Almost half have asked us to stay in touch
  • Supported almost 60 people affected by MND totalling around £12,500 through our emergency grant scheme.
  • Created an online Coronavirus information hub, providing a one-stop shop to answer questions and explain our work in this area
  • Launched a campaign urging the government to recognise people with MND as among those who need shielding as ‘extremely vulnerable persons’
Global MND Awareness Day infographic

Now the Association would like to extend a hand of thanks on this #GlobalMNDAwarenessDay to:

  • 240 volunteers who have spent time during lockdown ringing people affected by MND to offer support
  • 500 people who have signed up for a virtual event since lockdown began
  • 4,680 fundraisers who give to us on a regular basis as well as the almost 4,000 people who have donated to the emergency appeal
  • 6,290 people who joined our #GetMNDOntheList campaign
  • Our 10,000 members
  • Our legacy pledgers, community fundraisers, corporate partners, trusts, foundations and high profile supporters